
Terry Cockerham,
Light & Bytes Inc.
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Twins Stacey Ruby, RN (left), and Tracey
Greenwood, RN, are part of the nursing team that
is helping twins Ahmed (left) and Mohamed recover
from surgery that separated the formerly conjoined
brothers.
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Robin McCune saw two little boys in her dreams, lying
side by side in a bed. So did Tracey Greenwood. Janet
Doggett said two of her co-workers told her of visions
of the same toddlers sitting up, playing together in
the sand.
“I know we’re not supposed to become attached
to our patients,” said Doggett, RN, “but
these little guys wrap their fists around your heart
and they don’t let go.”
| Types
of conjoined twins |
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Craniopagus
Dorsal or rear union of the head. Separation possible.
Cephalopagus Ventral or frontal
union including head and chest (two faces on opposite
side of the head). Nonviable.
Rachipagus Dorsal or rear union
at the spine. Rare.
Parapagus Lateral or side union,
sometimes with shared limbs. Separation possible.
Pyopagus Dorsal or rear union
at pelvis. Rare, but separation and outlook for
both twins are good.
Ischiopagus Ventral or frontal
union at pelvis with shared intestines, bladders,
genitals and kidneys. Separation survival rate
is good, with impaired excretion and sexual function.
Omphalopagus Ventral or frontal
union at abdomen, often with shared liver. Highest
survival rate among conjoined twins, since liver
tissue can regenerate.
Thoracopagus Ventral or front
union at the chest often with shared heart. Usually
not viable, although separations have been attempted
to save one twin.
Parasitic Additional limbs, torsos
or heads on living twin, the result of the undeveloped
twin’s early death in utero.
Source: Conjoined Twins International
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Last summer, all three nurses at Medical City at Dallas
Hospital were under the spell of a special pair of patients.
Two-year-old conjoined twins Ahmed and Mohamed Ibrahim
smiled, played and laughed their way into the nurses’
spirits during the 17 months they spent at two Dallas
hospitals.
Ahmed and Mohamed realized nothing unique about being
craniopagus twins joined at the crown of their skulls.
They also knew nothing of life outside hospitals or
one void of the extended family of nurses who happily
played exciting games of patty-cake and “So Big.”
Nurses were as ingrained as family. Their connection
with the boys is what made October so anxious and frightening
for the 20 or more nurses at Medical City and the on-campus
affiliated North Texas Hospital for Children (NTHC)
that took part in some aspect of the twins’ care.
As the date for their high-risk separation surgery neared,
the shared image of Mohamed and Ahmed—standing
apart and looking into each other’s eyes for the
first time—was rampant.
“The chances of them surviving this were so slim,
and we were so worried and concerned,” said McCune,
RN, the pediatric nursing supervisor at NTHC. “And
I told Tracey [Greenwood], ‘Don’t think
I’m weird, but I had a dream that I walked into
the boys’ room and they were separate and they
were in the same bed.’ And she said, ‘I
had the same dream.’ It was the weirdest thing.”
Two of a kind
It doesn’t take an imagination to see the boys
sitting apart these days. But until a few months after
their historic separation surgery, it required a security
clearance.
With intense media interest in the twins still at a
fevered pitch, visitor access to the boys’ ward
was restricted to family and a select group of approved
hospital personnel.
Among the few to regularly see the twins were Greenwood,
RN, and Stacey Ruby, RN, staff nurses at NTHC who came
to treasure their unimpeded quality time with their
“little guys.” Greenwood is the boys’
favorite playmate for So Big, a game in which she asks,
“How big is Mohamed?” or “How big
is Ahmed?” It wasn’t long before the sight
of Greenwood entering their room prompted Mohamed and
Ahmed to instinctively raise their arms.
They don’t do it when Ruby walks into the room,
which proves to the nurses just how observant the boys
are. Ruby happens to be Greenwood’s own identical
twin. While most consider them dead ringers, the boys
know Ruby is the “Patty-cake” and “Old
MacDonald” sing-along nurse.
“They are normal little boys, and we’ve
seen how their personalities have grown after the surgery,”
Ruby said. “Separate little personalities that
you just didn’t get to see when they were conjoined.
That’s really cool.”
In Mohamed, the nurses already spy a fun-loving, mischievous
streak. He loves to reach for pagers and cell phones,
and tries to get away with usual 2-year-old antics.
After being scolded to “be nice” after striking
Ahmed, Mohamed quickly learned to start rubbing his
cheek and saying “nice” to show he’s
learned his lesson.
He’s also a charmer. McCune said Mohamed once
grabbed her hand in the hallway, pulled it to his lips
and kissed it like a perfect gentleman. “He just
smiled,” McCune said, with a laugh.
Ahmed, the nurses said, is more reserved and less bold.
He is also, thus far, slightly behind his brother in
their rehabilitation efforts. Mohamed is gaining strength
and learning to walk, while therapists are still working
with Ahmed to strengthen his neck muscles to hold his
head straight. Both have years of rehabilitative work
ahead, to strengthen muscles that they didn’t
use while together. They also face more surgeries, including
reconstructive surgery in the spring.
Mohamed has adopted a protective affection for Ahmed,
keeping a guarded watch over his brother. They suspect
some of it may be in self-interest, the nurses admit.
“If you’re doing something to help Ahmed,
like putting down an empty tube or doing something that
hurts and upsets him, Mohamed won’t cry ... because
he doesn’t want you to do that to him,”
Ruby said, with a laugh.
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