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Continued from Page 2
Shift from the self
In the postmodern era, individuals have begun to focus
more on their place in the community and less on themselves,
Kuepfer said. All people, including agnostics and atheists,
ask how they can make meaning out of their lives and
have the need to connect with something bigger than
themselves, he said.
Along with a shift in individuals’ attitudes
has come a shift in the duties of hospital chaplains.
Chaplains may have focused exclusively on providing
religious rites for patients and their families 10 or
15 years ago, Kuepfer said, but now they focus more
on empowering hospital staff members to serve the community.
Through the “Because We Care” team, Kuepfer,
along with health care professionals in the pediatrics
unit at Sioux Valley Children’s Hospital, try
to meet staff members’ spiritual needs and educate
them on how to talk to patients about spirituality.
In 2002, team member Val Lentz, RN, a case manager
at the children’s hospital, examined pediatric
nurses’ responses to grief and loss. She did this
as part of her bachelor’s degree program in management
at the University of Sioux Falls. Her survey revealed
that nurses generally don’t feel competent when
caring for the spiritual and emotional needs of patients
and their families. The nurses believed they needed
a strong base of support and that they needed to learn
how to take better care of themselves before they could
take care of others.
After Lentz presented the results to her co-workers,
the pediatrics unit worked to integrate spirituality
better into nursing care. The unit has set up a Because
We Care board, where staff members post what’s
going on in their lives so they can offer each other
support. The unit also has debriefing sessions after
patients die, and Kuepfer offers monthly “chats
with the chaplain” for unit staff members.
To learn how to address patients’ spiritual needs,
staff members attend a discussion run by Kuepfer and
Carol Cressman, RN, a critical care nurse in the children’s
hospital intensive care unit who is also a part of the
Because We Care team. The discussion focuses on coping
with children’s deaths and how to talk to their
family members about it.
Sioux Valley health care workers also have focused
on meeting patients’ spiritual needs right before
death. The health care workers have done this through
the bereavement program, which Cressman helped create
in 1987. Through the program, medical staff members
have referred family members to guidance counselors
and religious officials. Staff members also have honored
families’ requests to have the appropriate religious
official present during the child’s death.
Families have told Cressman that the bereavement program
has made a difference. “It brings home how very,
very important your role as a nurse is,” Cressman
said.
Some nurses contend that patients’ spiritual
needs have increased in recent years. Although Marr
believes that Sept. 11 has prompted patients to ask
more theological questions and wonder more about the
meaning of life, Lentz attributes the heightened spirituality
to the rise in the number of children with chronic medical
needs. The medical field has improved so much in caring
for babies who are chronically ill that babies who didn’t
used to survive now survive into childhood, she said.
Cressman said that nurses have focused more on spirituality
because of the recent emphasis on hospice and palliative
care. She also believes it may have to do with the aging
nursing workforce. Generally, as people get older, spirituality
becomes more important to them, she said.
Through the years, Cressman has been able to integrate
her spiritual skills more easily into her practice.
She recalls last year, when she believes she helped
a teenage cancer patient prepare for death.
“Does it hurt when your heart stops?” the
girl asked her.
Cressman told the girl truthfully that she didn’t
know. But she also assured her that children usually
seem comfortable when they die and that medical professionals
do everything they can to make sure patients are comfortable.
A few days later, as the girl died, the nurse believes
she felt safe and comforted.
“It’s eye-opening to touch a heart and
soul and reach that kind of connectedness,” Cressman
said. “All I needed [right then] was my hands
and heart. My technical skills as a nurse did not matter.”
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the spirit
When approaching patients about spirituality:
- Ask patients if they have any cultural or
religious beliefs that would affect their care.
- Identify where spiritual resources are. These
could include hospital chaplains, social workers
and whatever spiritual resources the patient
already uses. Ask patients if there is any spiritual
leader they would like you to call. If the hospital
has a chaplain who visits patients regularly,
ask patients if they would want the chaplain
to visit them.
When praying with patients and their
family members:
- Only consider praying with patients if they
or their family members request prayer.
- Pray only if you’re comfortable with
praying.
- Pray specifically for what the patient or
family requests.
- Be simple and direct in prayer.
- Focus on the good of the patient, rather
than your own good.
SOURCE:
The Rev. Scott Kuepfer, chaplain at Sioux Valley
Children’s Hospital in Sioux Falls, S.D.
Phrases to help elicit patients’
spiritual concerns:
- Use open-ended questions such as, “You
mention trust in God. Does your trust in God
lead you to think about cardiopulmonary resuscitation
in a particular way?”
- Try to get a better understanding of what
patients are thinking by asking them to elaborate—for
instance, “You said you want to place
yourself in God’s hands. Tell me more
about what this means to you.”
- Acknowledge and normalize patients’
concerns. Example: “Many patients ask
such questions.”
- Use empathetic comments, such as, “That
sounds like a painful situation.”
- Ask how patients are doing emotionally.
Pitfalls in discussing spiritual matters
near the end of life:
- Don’t try to solve the patient’s
problem or answer unanswerable questions. People
who have little theological training or expertise
are not equipped to answer such questions. Ironically,
patients may feel comforted when another person
is simply present or “walks with them.”
- Do not impose your spiritual beliefs on the
patient.
- Do not offer premature reassurance, such
as, “Cancer is not a punishment from God.”
Immediate reassurance may seem superficial and
deter patients from disclosing—and ultimately
addressing—other important issues.
Rebecca Ray
SOURCE:
Lo, Bernard, et al. (2002). “Discussing
Religious and Spiritual Issues at the End of Life:
A Practical Guide for Physicians.” The Journal
of the American Medical Association, 287(6), 749-754.
Rebecca Ray
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Contact
Rebecca Ray at rebeccar@nurseweek.com.
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