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"The first day, I could barely walk five minutes
on the treadmill," she said. "I was so weak
that I had to lie down for an hour before I could pick
my daughter up from the child care center."
Four years after her diagnosis, Dancer said she feels
great most of the time. She tires occasionally, but
can't pinpoint whether it's the effects of PPCM or her
busy lifestyle. She will probably be on cardiac medications
for the rest of her life, but she maintains an active
lifestyle with her husband and daughter and exercises
every day. She continues to work 20 hours a week as
a cardiac rehab nurse at Baylor All Saints Medical Center
in Fort Worth, Texas.
She also is committed to educating her colleagues and
expectant moms about the dangers of PPCM. She has conducted
an in-service to labor and delivery nurses and is working
with a local nursing school to schedule a workshop for
nursing students this summer.
"While doctors are acutely on the lookout for
signs of pre-eclampsia or pulmonary embolism, they don't
usually look for signs of PPCM," Dancer said. "Although
it is more rare than other pregnancy complications,
I think it's imperative for caregivers to recognize
the symptoms."
Dancer recommends that doctors listen to a patient's
breathing during the last trimester of their pregnancy.
She also thinks that labor and delivery nurses can play
a critical role in early diagnosis of PPCM by performing
a thorough pulmonary assessment just before a new mom
is discharged.
"Nurses should teach every new mom to seek help
immediately for shortness of breath, new onset of a
cough and especially when they have shortness of breath
when they lie down," she said. "In addition,
doctors should be more thorough in their pulmonary assessments
of new moms."
Dancer's ultimate goal is to have the symptoms of PPCM
listed on discharge instructions at hospitals across
the United States. She would like to specifically educate
ob/gyn staff and nurses about the signs and symptoms
of PPCM.
"All too often, PPCM patients are misdiagnosed
with asthma, pneumonia or panic attacks," she said.
"It's frightening how many PPCM patients are given
anxiety meds or an inhaler and sent home."
Dancer has become an advocate for the many women who
are diagnosed with PPCM each year. She maintains an
"Ask the Nurse" column on a PPCM Web site
(www.ppcmsupport.com), and frequently fields questions
from expectant mothers and PPCM patients all over the
world.
"I recently communicated via the Internet with
a pregnant woman in Japan who had a persistent cough
and was given inhalers when she visited the ER,"
Dancer said. "I encouraged the woman to go back
to the hospital and demand an echocardiogram, chest
X-rays, etc. She, in fact, had PPCM and while they were
delivering her baby, she arrested in the OR and woke
up on a ventilator three days later."
Despite the trauma that PPCM caused in her life, Dancer
is thankful for her blessings.
"In hindsight, PPCM has made me a better mother
and a better nurse," she said. "I have slowed
down a lot and I appreciate the simple things in life.
I don't take anything in life for granted, and I can
empathize better with my heart failure patients because
I know what an [ejection fraction] of 25 percent to
30 percent feels like."
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