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It's a brilliant Texas morning and Susan Dancer, RN,
is chasing 4-year-old daughter Rachel around the park.
"Catch me, Mommy!" Rachel shrieks, and Dancer
grabs her in a hug as they both collapse in a fit of
giggles.
It's a heartwarming picture, and Dancer is grateful
to have these precious moments.
Four years ago, her future didn't seem quite as promising.
Shortly after Rachel's birth, Dancer became critically
ill and was eventually diagnosed with peripartum cardiomyopathy,
or congestive heart failure. Although her story ultimately
had a happy ending, Dancer has become a passionate advocate
for PPCM patients. She takes an aggressive approach
to educating medical professionals about this rare yet
lethal disease that is often misdiagnosed.
In the United States, PPCM complicates one in every
1,300 to 4,000 deliveries. Although it can occur in
childbearing women of any age, it's most common in women
older than 30. Typically, the condition is diagnosed
during the last month of pregnancy, or within five months
after delivery.
After years of trying to become pregnant, Dancer learned
in 1998 that her attempt at in vitro fertilization was
successful. She and her husband, Jim, eagerly awaited
the birth of their first child.
At 29, Dancer was the picture of good health. She swam
three miles a day three days a week, exercised regularly,
ate healthy foods and maintained a normal weight throughout
her pregnancy.
She was happy in her job as a nurse in cardiac critical
care, and although she admits to being drawn to patients
with congestive heart failure, she had no history of
heart disease and had never even heard of PPCM.
Dancer's pregnancy was uneventful until the last six
weeks, when she developed edema, gestational diabetes
and moderately elevated blood pressure. Her doctor told
her they would monitor her closely, and Dancer continued
to work full time.
Two weeks before her due date, Dancer gained 11 pounds
of fluid in three days. Her doctor took her off work
with orders to rest. Because of her diabetes and high
blood pressure, doctors decided to induce labor on Dancer's
due date.
After an 18-hour labor that culminated in a cesarean,
Dancer spent five days in the hospital. When she was
discharged, her blood pressure remained slightly elevated.
"I had been home about two nights when I awoke
quickly and suddenly," Dancer said. "My heart
was pounding at about 130 beats per minute and I was
short of breath."
During the next few days, Dancer spent her nights sleeping
in a recliner in the nursery. Her symptoms improved
during the day, except for a feeling of constant fatigue.
"As a cardiac care nurse, I feel I should have
recognized the signs and symptoms of congestive heart
failure," Dancer said. "Instead, I took the
passive patient role and let my doctor convince me that
everything was fine and that I just needed to move around
more and not worry so much."
Finally, a week later, Dancer called a physician friend
who ran an ECG and saw that it was mildly abnormal.
A chest X-ray was ordered and the results showed that
Dancer was in congestive heart failure with an enlarged
heart and fluid in both lungs. She was prescribed a
diuretic and a cardiology appointment was made for the
next day.
Dancer still can remember sitting in the exam room
and making small talk with her cardiologist.
"I saw the ejection fraction 25 percent to 30
percent on my chart and I remember feeling scared,"
she said. "I had taken care of patients who were
on ventilators with ejection fractions better than that."
Her doctor prescribed rest plus diuretics and an increasing
dose of ACE inhibitors and beta blockers. Two months
later, her ejection fraction was up to 35 percent and
Dancer began cardiac rehab, a patient in the same hospital
where she previously worked in critical care and cardiac
rehab.
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