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Continued from Page 2
While at the Cancilla residence, Jeanne slips an
envelope to Anthony's side of the table. Her co-worker
landed extra free tickets to the Great America theme
park and Jeanne knew exactly who should have them. The
uncle is almost reluctant to accept the gift, but he
finally opens the envelope and repeats several thank-you's.
For Antonio's uncle, Jeanne's visits are vital.
"She explains everything step by step, and I can
call any time of night," Anthony explains. "It
takes a lot of pressure off."
Sometimes, she offers clinical information, like
explaining that Antonio's medication causes his face
and limbs to swell. Other times, she simply listens.
He's not doing well," the uncle says to her.
"We sat and talked, and he keeps saying he doesn't
want to die."
Fabricius admitted that experiences like this would
have frustrated her in the past. Earlier in her hospice
career, she questioned God's reasons for allowing the
death of children. But after taking care of more than
500 patients ranging from 1 week old to 100 years old,
she's found peace in knowing she can't understand why,
at least for now.
"I do get sad sometimes, but I know my mission
is to help patients die as comfortably as possible,"
she said. "I feel very fulfilled when my patients
die comfortably in their own homes."
A secondary mission for hospice nurses is to offer
support to caregivers who are often bewildered by a
slew of new responsibilities. Deborah Gates, 48, had
been married to Stephen Gates for less than two years
when doctors told the couple in July that her husband's
renal cancer had spread to his liver, spine and chest.
Gates remembers feeling emotionally wrenched when her
husband said he wanted to go fishing one last time before
he died.
"Jeanne [Fabricius] told me that I shouldn't tell
him 'No,' but instead to tell him 'We're seeing what
we can do about that,' " Gates said.
Gates also said she felt irritated when her husband
would tear off clothing she had just carefully dressed
him with, but Fabricius explained that this behavior,
called terminal agitation, was normal.
Consoling caregivers is a particularly crucial part
of the job for Christy Torkildson, MSN, RN, coordinator
of the pediatric palliative care program at University
of Texas Health Science Center in San Antonio. She provides
hospice-type care to children who are dying, and regularly
sees just how much pain these parents experience. "Some
parents do very well, but some have a hard time and
it takes a long time to work through their grief,"
she said. "The ones who do best are the ones who
embrace the experience in some way and have support
and spirituality."
In many cases, it's the children who help the parents
embrace the situation. Torkildson remembered one 13-year-old
boy with bone cancer who recorded tapes for his little
sister to open on special birthdays because he wouldn't
be there. There was also a 17-year-old girl who told
her mother she'd die on her birthday because this way
her mother would have to be sad only one day a year.
She did. Torkildson also recounted the story of a 5-year-old
girl who made a will and gave her favorite toys to specific
people.
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