Pete Wick had the
sinking sense that his mother's condition was worsening when she called
to ask why he hadn't shown up for her memorial service. His mother,
80-year-old Beatrice Wick of Laguna Hills, Calif., had been an RN caregiver
for more than 30 years. Now, she was suffering from Alzheimer's disease
and needed his care.
Beatrice, known
as "Bea" to friends and family, told Pete that she'd been
shot and killed outside her church. When he asked why she needed a memorial
if she was talking to him, she answered, "Well, that's customary."
Then she explained that she had survived.
Although delusions
are common for Bea, she can accurately remember vivid details about
her nursing career. Bea, her caregiver and Pete all agree that Bea's
years in nursing have influenced her approach to Alzheimer's disease.
It's made her a particularly inquisitive patient and eager to teach
others what she learns about the disease. Her respect for the health
field also prompted Bea to sign up for a research project related to
Alzheimer's.
Although her clinical
training has its benefits, Bea admits that the role of patient can chafe
at times. "It's difficult to be the receiver of care instead of
the giver," she said.
Her career as a
nurse began in 1941 when she took a job as an operating room supervisor.
Two years later, she transferred to an office nurse position and continued
in that role for more than two decades. In 1975, she moved on to work
as an industrial nurse at a carpet manufacturing facility.
She recounted a
story of when a worker came to her with foot problems. She took one
look at his shoes and suggested he replace them, and explained that
the company would pay half of the cost of the new shoes. He was so thankful
that he brought his family to the plant after buying the shoes to thank
Bea.
Even after she
retired, Bea was known for helping friends understand medical instructions
on their prescriptions, or for helping others who needed injections
at home. She also visited shut-ins regularly.
When she began
missing dental appointments and leaving groceries in the car for days,
Pete dismissed it as routine forgetfulness. She always had an explanation
for the mistake.
More than forgetfulness
These explainable mistakes continued for two years, but an incident
1½ years ago signaled that this was more than typical memory
loss.
One day, Bea drove
her car 250 miles north and parked the vehicle in the middle of an intersection.
It was after this incident that Bea was diagnosed with Alzheimer's disease.
She had to give up her car, one of the most painful losses so far, Bea
said.
She is one of 4
million Americans who have the disease. Researchers have not determined
what causes Alzheimer's, and age is the only clear risk factor, said
Bill Thies, vice president of medical and scientific affairs for the
Alzheimer's Association. Nearly half of those older than 85 have the
disease and one in 10 older than 65 have it. Sufferers live an average
of seven to eight years after being diagnosed, according to the association.
At first, people
with the disease will experience memory loss, such as forgetting directions
to places and names of people, Thies said. Then the memory loss becomes
more severe, which may result in one becoming lost in familiar surroundings.
Delusions can be common as well. In the late stages of the disease,
people often forget to perform daily activities, such as bathing, dressing
and eating.
Finally, Alzheimer's
patients lose motor control and may have trouble walking and swallowing.
People sometimes die from the inability to swallow because their saliva
drips down the trachea and causes conditions such as pneumonia.
But because Alzheimer's
patients usually are older, in many cases people simply die from other
conditions unrelated to the disease, such as cancer or heart attacks.
As Bea's condition
has progressed, her delusions have become more elaborate. She has talked
repeatedly about the family's new grandchild, but Pete said there is
no new grandchild. One time, she called Pete's relatives and friends
because she believed he had died.
One person called
his home to console his wife, only to have Pete answer the phone. Pete
immediately went to Bea's home to show her he was alive, but she showed
no signs of relief or joy. She already had forgotten the delusion.
"Of course
it's devastating because you see a family member slipping away,"
Pete said. "But much of what happens is so funny you can't stand
it. You have to laugh or it hurts too much."
At one point, Bea
started sending car ads as payment for bills. That's when Pete knew
he needed to take over management of her finances. Luckily, Bea had
set up a family trust before she was diagnosed, and that gave him the
legal right to handle her finances. If she'd waited until after the
diagnosis, she would have been deemed mentally incapacitated and a judge
would have intervened to create the trust.
Nursing instincts
Although Bea struggles with delusions and daily activities, the disease
hasn't robbed her of her nursing instincts. She is a member of an Alzheimer's
support group and actively reads about the disease. She teaches her
new findings to people, such as her caregiver, Luz Andres. Bea also
is quick to pass on hygiene tips, Andres said. "She's the easiest
patient I've had in eight years," she said.
Bea's clinical
background also primed her to participate in an Alzheimer's study at
the University of California, Irvine. The researchers are comparing
the brains of Down syndrome patients with Alzheimer's patients.
Bea said she also
keeps in touch with former nurse co-workers, who supply encouragement
and a sense of connection.
Although her nursing
background helps her to cope, it can't reverse the effects of the disease.
Recently, she has been unable to understand that she needs to get up
at a certain time to dress for church. As a result, her carpool stopped
coming by. Her inability to understand the concept of being ready at
a certain time also drove away a male friend she'd had for 13 years.
Bea's condition
will continue to decline as accumulations of proteins-called plaques
and tangles-multiply in her brain. These protein accumulations are toxic
to nerve cells and result in the death of these cells.
But Pete is determined
to help his mom live in her retirement community as long as possible
before he moves her to an institution. Although she no longer has the
ability to be a model nurse, she's still an example to others-this time
as a patient.
"It's remarkable
that even on her most difficult days she carries herself with a lot
of dignity," Pete said. "I think as a nurse she felt that
a positive attitude was 'good medicine' for many things, and she really
lives up to that advice."