Pete Wick had
the sinking sense that his mother's condition was worsening when
she called to ask why he hadn't shown up for her memorial service.
His mother, 80-year-old Beatrice Wick of Laguna Hills, Calif.,
had been an RN caregiver for more than 30 years. Now, she was
suffering from Alzheimer's disease and needed his care.
Beatrice,
known as "Bea" to friends and family, told Pete that
she'd been shot and killed outside her church. When he asked why
she needed a memorial if she was talking to him, she answered,
"Well, that's customary." Then she explained that she
had survived.
Although delusions
are common for Bea, she can accurately remember vivid details
about her nursing career. Bea, her caregiver and Pete all agree
that Bea's years in nursing have influenced her approach to Alzheimer's
disease. It's made her a particularly inquisitive patient and
eager to teach others what she learns about the disease. Her respect
for the health field also prompted Bea to sign up for a research
project related to Alzheimer's.
Although her
clinical training has its benefits, Bea admits that the role of
patient can chafe at times. "It's difficult to be the receiver
of care instead of the giver," she said.
Her career
as a nurse began in 1941 when she took a job as an operating room
supervisor. Two years later, she transferred to an office nurse
position and continued in that role for more than two decades.
In 1975, she moved on to work as an industrial nurse at a carpet
manufacturing facility.
She recounted
a story of when a worker came to her with foot problems. She took
one look at his shoes and suggested he replace them, and explained
that the company would pay half of the cost of the new shoes.
He was so thankful that he brought his family to the plant after
buying the shoes to thank Bea.
Even after
she retired, Bea was known for helping friends understand medical
instructions on their prescriptions, or for helping others who
needed injections at home. She also visited shut-ins regularly.
When she began
missing dental appointments and leaving groceries in the car for
days, Pete dismissed it as routine forgetfulness. She always had
an explanation for the mistake.
More than
forgetfulness
These explainable mistakes continued for two years, but an incident
1½ years ago signaled that this was more than typical memory
loss.
One day, Bea
drove her car 250 miles north and parked the vehicle in the middle
of an intersection. It was after this incident that Bea was diagnosed
with Alzheimer's disease. She had to give up her car, one of the
most painful losses so far, Bea said.
She is one
of 4 million Americans who have the disease. Researchers have
not determined what causes Alzheimer's, and age is the only clear
risk factor, said Bill Thies, vice president of medical and scientific
affairs for the Alzheimer's Association. Nearly half of those
older than 85 have the disease and one in 10 older than 65 have
it. Sufferers live an average of seven to eight years after being
diagnosed, according to the association.
At first,
people with the disease will experience memory loss, such as forgetting
directions to places and names of people, Thies said. Then the
memory loss becomes more severe, which may result in one becoming
lost in familiar surroundings. Delusions can be common as well.
In the late stages of the disease, people often forget to perform
daily activities, such as bathing, dressing and eating.
Finally, Alzheimer's
patients lose motor control and may have trouble walking and swallowing.
People sometimes die from the inability to swallow because their
saliva drips down the trachea and causes conditions such as pneumonia.
But because
Alzheimer's patients usually are older, in many cases people simply
die from other conditions unrelated to the disease, such as cancer
or heart attacks.
As Bea's condition
has progressed, her delusions have become more elaborate. She
has talked repeatedly about the family's new grandchild, but Pete
said there is no new grandchild. One time, she called Pete's relatives
and friends because she believed he had died.
One person
called his home to console his wife, only to have Pete answer
the phone. Pete immediately went to Bea's home to show her he
was alive, but she showed no signs of relief or joy. She already
had forgotten the delusion.
"Of course
it's devastating because you see a family member slipping away,"
Pete said. "But much of what happens is so funny you can't
stand it. You have to laugh or it hurts too much."
At one point,
Bea started sending car ads as payment for bills. That's when
Pete knew he needed to take over management of her finances. Luckily,
Bea had set up a family trust before she was diagnosed, and that
gave him the legal right to handle her finances. If she'd waited
until after the diagnosis, she would have been deemed mentally
incapacitated and a judge would have intervened to create the
trust.
Nursing
instincts
Although Bea struggles with delusions and daily activities, the
disease hasn't robbed her of her nursing instincts. She is a member
of an Alzheimer's support group and actively reads about the disease.
She teaches her new findings to people, such as her caregiver,
Luz Andres. Bea also is quick to pass on hygiene tips, Andres
said. "She's the easiest patient I've had in eight years,"
she said.
Bea's clinical
background also primed her to participate in an Alzheimer's study
at the University of California, Irvine. The researchers are comparing
the brains of Down syndrome patients with Alzheimer's patients.
Bea said she
also keeps in touch with former nurse co-workers, who supply encouragement
and a sense of connection.
Although her
nursing background helps her to cope, it can't reverse the effects
of the disease. Recently, she has been unable to understand that
she needs to get up at a certain time to dress for church. As
a result, her carpool stopped coming by. Her inability to understand
the concept of being ready at a certain time also drove away a
male friend she'd had for 13 years.
Bea's condition
will continue to decline as accumulations of proteins-called plaques
and tangles-multiply in her brain. These protein accumulations
are toxic to nerve cells and result in the death of these cells.
But Pete is
determined to help his mom live in her retirement community as
long as possible before he moves her to an institution. Although
she no longer has the ability to be a model nurse, she's still
an example to others-this time as a patient.
"It's
remarkable that even on her most difficult days she carries herself
with a lot of dignity," Pete said. "I think as a nurse
she felt that a positive attitude was 'good medicine' for many
things, and she really lives up to that advice."