Terri Russell,
MS, NNP, RN, met Peter when he weighed less than 1½ pounds. The
premature baby was born at 24 weeks-16 weeks early. Peter's mother was
forced to deliver early because of pregnancy-induced hypertension. Had
he been born much earlier, doctors would not have been able to save
him.
Russell, a nurse
in the neonatal intensive care unit at Loyola University Medical Center
in Chicago, kept a close watch on Peter. She had to be alert for signs
of eating problems, breathing difficulties, brain bleeding and a slew
of other dangers specific to preemies.
Although Peter's
outcome was uncertain, modern technology is the primary reason he had
at least a fighting chance. Advances in medicine not only have reduced
the ages of babies in NICUs, but also have transformed the experiences
of the nurses who work in these units.
The technology
is introducing challenging ethical questions and changing the nature
of neonatal nurses' interactions with parents.
Artificial surfactant
is one of the most pivotal innovations in NICUs nationwide, Russell
said.
Preemies often
fail to produce enough natural surfactant, a fluid that helps the alveoli
remain open for normal breathing. Doctors today can administer artificial
surfactant to assist babies who have immature lungs.
Preemies today
also have the advantage of specialized baby ventilators. In the past,
NICUs were filled with adult ventilators that were adjusted to breathe
for newborns, but these machines inevitably put out too much oxygen
and damaged the babies' lungs, said Elaine Eike, MSN, NNP, RN, a neonatal
nurse at Seton Medical Center in Austin, Texas.
Job satisfaction
Eike said these advancements make her job even more satisfying.
"The job is
much more enjoyable because I can honestly tell parents that in most
cases, there is a reasonable chance that their child will live and do
well," Eike explained.
In contrast, babies
born at 34 weeks in the early 1960s had only a 3 percent chance of survival,
according to a report from the Coalition for Prematurity Awareness.
In the early 1980s,
preemies born at 26 weeks had about a 30 percent chance of survival.
Since the invention
of artificial surfactant, these babies have about an 80 percent survival
rate, and babies born at 34 weeks now have a 97 percent chance of living,
according to the coalition's report.
Even with the aid
of modern advancements, Peter was struggling to function smoothly. Russell
and the other neonatal nurses vigilantly watched for any changes in
his condition-a challenging job when the patients aren't even developed
enough to cry when in pain, let alone talk.
Monitoring babies
The nurses use other clues as signs that something is wrong, such as
changes in heart rate or sugar levels, or failure to respond to touch.
In addition to
monitoring babies, Russell also has the job of relating information
to the parents of preemies. She explains the purpose of the tubes and
monitors to parents, who often are overwhelmed by spending the first
months of their baby's life in a high-tech environment.
In fact, neonatal
nurses today spend more time with the parents than ever before. Now,
fathers and mothers are encouraged to bond with their babies and are
considered important caregivers, despite the tubes and machines.
"Parents can
get fixated with numbers on the monitors," said Susan Greenleaf,
RN, a neonatal nurse at Tacoma General Hospital in Washington.
Greenleaf teaches
parents that the technology is a valuable tool, but that they are still
the baby's primary caregivers. Parents know the baby's needs because
they usually spend more consistent time with the infant than the nurses
who are in and out, depending on their shifts, Greenleaf said.
NICUs today also
are populated with the older siblings of the preemies to encourage bonding,
as well as to help the other children understand why their parents are
at the hospital much of the time, nurses said.
For Russell, interacting
with parents can be the greatest joy at times and a painful experience
at others.
"In the early
days, it was hard to see [Peter's father] so concerned for his wife
and baby," Russell said. "It's also hard being the bearer
of bad news. As time went on, though, they learned to trust me. They
see that we're going through this together."
One of the pieces
of bad news was that Peter had some bleeding in his brain. This put
him at risk for cerebral palsy and other motor problems, Russell said.
At 1 month of age, he needed surgery for another problem. The procedure
would close a connection between two major blood vessels that usually
close naturally in term babies.
Peter survived
the surgery and, at 6 weeks, he was ready to breathe without a ventilator.
He steadily grew to 4 pounds 10 ounces, and went home with his parents
June 14.
The effects of
brain bleeding likely will not show up until he is older, Greenleaf
said.
Although the new
technology allows babies like Peter to live, it also broaches complicated
questions for neonatal nurses. Preemies are particularly at risk of
suffering from impairments such as cerebral palsy, loss of sight, hearing
loss and mental retardation, Greenleaf said.
"My job [poses]
an ethical question because we are saving babies that shouldn't survive
at all," she said. "Some turn out perfect, but some end up
with a lot of damage."
At times, modern
technology can make the job more emotionally trying for nurses. Babies
who would have died soon after birth in the past now can be sustained
for months in the NICU.
Greenleaf said
it's more difficult to watch babies die after caring for them for several
months, and because fewer babies die today than 10 years ago, it's even
more of a blow when one doesn't make it, she said.
She remembers Dylan,
one of two male twins born at 27 weeks. Dylan's twin brother died soon
after birth, but Dylan was sustained in the NICU. He had lung problems
and remained dependent on a ventilator to breathe. He also had feeding
problems.
Dylan fought for
life for six months, but then died of heart failure.
"You feel
sad, and you feel a huge loss for the parents," Greenleaf said.
"But you learn how to leave it at work because if you don't separate
from the pain, you won't survive."
But Greenleaf,
Eike and Russell all agree that one of the best sources of perspective
is when former NICU babies come back to visit.
Eike remembers
one boy who had been born extremely premature who stopped by the hospital
to tell her he was studying chemical engineering in college. "When
you have these little ones who weren't supposed to survive and they
come back, it's pretty amazing," Eike said.