Terri Russell,
MS, NNP, RN, met Peter when he weighed less than 1½ pounds.
The premature baby was born at 24 weeks-16 weeks early. Peter's
mother was forced to deliver early because of pregnancy-induced
hypertension. Had he been born much earlier, doctors would not
have been able to save him.
Russell, a
nurse in the neonatal intensive care unit at Loyola University
Medical Center in Chicago, kept a close watch on Peter. She had
to be alert for signs of eating problems, breathing difficulties,
brain bleeding and a slew of other dangers specific to preemies.
Although Peter's
outcome was uncertain, modern technology is the primary reason
he had at least a fighting chance. Advances in medicine not only
have reduced the ages of babies in NICUs, but also have transformed
the experiences of the nurses who work in these units.
The technology
is introducing challenging ethical questions and changing the
nature of neonatal nurses' interactions with parents.
Artificial
surfactant is one of the most pivotal innovations in NICUs nationwide,
Russell said.
Preemies often
fail to produce enough natural surfactant, a fluid that helps
the alveoli remain open for normal breathing. Doctors today can
administer artificial surfactant to assist babies who have immature
lungs.
Preemies today
also have the advantage of specialized baby ventilators. In the
past, NICUs were filled with adult ventilators that were adjusted
to breathe for newborns, but these machines inevitably put out
too much oxygen and damaged the babies' lungs, said Elaine Eike,
MSN, NNP, RN, a neonatal nurse at Seton Medical Center in Austin,
Texas.
Job satisfaction
Eike said these advancements make her job even more satisfying.
"The
job is much more enjoyable because I can honestly tell parents
that in most cases, there is a reasonable chance that their child
will live and do well," Eike explained.
In contrast,
babies born at 34 weeks in the early 1960s had only a 3 percent
chance of survival, according to a report from the Coalition for
Prematurity Awareness.
In the early
1980s, preemies born at 26 weeks had about a 30 percent chance
of survival.
Since the
invention of artificial surfactant, these babies have about an
80 percent survival rate, and babies born at 34 weeks now have
a 97 percent chance of living, according to the coalition's report.
Even with
the aid of modern advancements, Peter was struggling to function
smoothly. Russell and the other neonatal nurses vigilantly watched
for any changes in his condition-a challenging job when the patients
aren't even developed enough to cry when in pain, let alone talk.
Monitoring
babies
The nurses use other clues as signs that something is wrong, such
as changes in heart rate or sugar levels, or failure to respond
to touch.
In addition
to monitoring babies, Russell also has the job of relating information
to the parents of preemies. She explains the purpose of the tubes
and monitors to parents, who often are overwhelmed by spending
the first months of their baby's life in a high-tech environment.
In fact, neonatal
nurses today spend more time with the parents than ever before.
Now, fathers and mothers are encouraged to bond with their babies
and are considered important caregivers, despite the tubes and
machines.
"Parents
can get fixated with numbers on the monitors," said Susan
Greenleaf, RN, a neonatal nurse at Tacoma General Hospital in
Washington.
Greenleaf
teaches parents that the technology is a valuable tool, but that
they are still the baby's primary caregivers. Parents know the
baby's needs because they usually spend more consistent time with
the infant than the nurses who are in and out, depending on their
shifts, Greenleaf said.
NICUs today
also are populated with the older siblings of the preemies to
encourage bonding, as well as to help the other children understand
why their parents are at the hospital much of the time, nurses
said.
For Russell,
interacting with parents can be the greatest joy at times and
a painful experience at others.
"In the
early days, it was hard to see [Peter's father] so concerned for
his wife and baby," Russell said. "It's also hard being
the bearer of bad news. As time went on, though, they learned
to trust me. They see that we're going through this together."
One of the
pieces of bad news was that Peter had some bleeding in his brain.
This put him at risk for cerebral palsy and other motor problems,
Russell said. At 1 month of age, he needed surgery for another
problem. The procedure would close a connection between two major
blood vessels that usually close naturally in term babies.
Peter survived
the surgery and, at 6 weeks, he was ready to breathe without a
ventilator. He steadily grew to 4 pounds 10 ounces, and went home
with his parents June 14.
The effects
of brain bleeding likely will not show up until he is older, Greenleaf
said.
Although the
new technology allows babies like Peter to live, it also broaches
complicated questions for neonatal nurses. Preemies are particularly
at risk of suffering from impairments such as cerebral palsy,
loss of sight, hearing loss and mental retardation, Greenleaf
said.
"My job
[poses] an ethical question because we are saving babies that
shouldn't survive at all," she said. "Some turn out
perfect, but some end up with a lot of damage."
At times,
modern technology can make the job more emotionally trying for
nurses. Babies who would have died soon after birth in the past
now can be sustained for months in the NICU.
Greenleaf
said it's more difficult to watch babies die after caring for
them for several months, and because fewer babies die today than
10 years ago, it's even more of a blow when one doesn't make it,
she said.
She remembers
Dylan, one of two male twins born at 27 weeks. Dylan's twin brother
died soon after birth, but Dylan was sustained in the NICU. He
had lung problems and remained dependent on a ventilator to breathe.
He also had feeding problems.
Dylan fought
for life for six months, but then died of heart failure.
"You
feel sad, and you feel a huge loss for the parents," Greenleaf
said. "But you learn how to leave it at work because if you
don't separate from the pain, you won't survive."
But Greenleaf,
Eike and Russell all agree that one of the best sources of perspective
is when former NICU babies come back to visit.
Eike remembers
one boy who had been born extremely premature who stopped by the
hospital to tell her he was studying chemical engineering in college.
"When you have these little ones who weren't supposed to
survive and they come back, it's pretty amazing," Eike said.