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A resident
of Houston since high school, Downers Grove, Ill., native Mary Beth
Mauer lives with her husband, Ken, their two Labrador retrievers,
Dave and Chula, and their two adopted daughters, Milagro, 9, and
Lourdes, 10, who she met while working at Texas Children’s Hospital.
Six years ago,
Mary Beth Mauer, RN, a clinical research nurse in the department
of pediatric cardiology at Texas Children’s Hospital in Houston,
had a problem. She was participating in a long-term study funded
by the National Institutes of Health to track the natural history
of AIDS in the pediatric population. This involved patients wearing
a Holter monitor for up to 24 hours and going about their normal
activities as the device registered data about their heartbeats.
The 2-pound
monitor presented little problem for the older children in the study,
but Mauer was working with some as young as 1 and 2.
"The monitors
used with the children were the same ones used by adults. The shoulder
straps made the monitors drag on the floor. And the kids had full
access to it, too. They’d pull the tubes and wires out, which disrupted
the data gathering," she said.
She put her
problem-solving skills to work and invented a solution: the TeddiTop.
Similar to the safety vests worn by highway workers, it slips over
the child’s head, fastening on the side with ties. A pouch on the
back holds the monitor safely out of reach.
"It took
about three months to come up with the initial prototype,"
Mauer said, "and within six months, we had developed a final
vest. We tried Velcro to close the sides, but it didn’t work. The
children could pull it open. We tried bow ties, and still use them.
There’s Velcro on the back pocket, to keep it closed," she
said.
She uses the
term "we" because the first TeddiTop was a group effort.
"When I
was a teen-ager, a lady I baby-sat for taught me to sew. That lady,
my sister-in-law and I got together and made the first one. After
that, participation seemed to be contagious. Volunteers from Texas
Children’s Hospital, the Gulf Coast Quilt Guild, the American Heart
Association and Houston Alpha Phi Alumnae all eventually got into
it, making vests and providing funding."
Funds have come
from many sources, including the Alpha Phi annual lollipop sales,
grants and the auxiliary to Texas Children’s Hospital.
"My mother
happens to be the president of the auxiliary. She’s always been
my biggest cheerleader, so she got them involved and was instrumental
in getting the vests made."
Mauer’s invention
met with mixed responses from her co-workers and others in the study.
Telemetry at the hospital adopted the vests, but other departments
turned them down. At a meeting of participants from other sites
in the study, her idea was well-received. Back at the study centers,
however, the concept fell apart in practice.
"I did
it originally for my personal needs, to collect data, which wasn’t
working with adult monitors. I was having success getting the data
and other centers weren’t. Volunteers made my vests other centers
had trouble getting that kind of help. They didn’t want to use the
idea, but eventually did. It was a matter of getting the data,"
she said.
To ensure the
quality of the data, the children must be able to move about freely
and play normally. The TeddiTop lets them do just that.
"It’s important
to collect long-term data to accurately diagnose the children’s
conditions. The vest is recommended for toddlers, basically from
1 to 3 years old. They’re not restrictive for the child. Also, the
TeddiTop takes away some of the child’s fear of the monitor, and
they get to choose which vest they’ll wear."
The children
love getting to choose, and great pains are taken to make the vests
attractive.
"Mostly
we use denim prints. It’s sturdy and washes best. They use different
designs, different patterns of denim, like with teddy bears and
such, with different trim," Mauer said.
Last year, Texas
Children’s Hospital asked the community to make donations to increase
the number of Holter monitors and TeddiTops. For $2,000, the unit
was inscribed with the donor’s name and a dedication. The TeddiTop
captured the public’s imagination and made the drive a success.
"One vest
was dedicated to Katy the Wonder Dog, and that unit is a great favorite
with the children. We greatly increased our supply of monitors and
TeddiTops, thanks to that drive."
Mauer’s advice
for nurses who have a product idea to improve patient care? Get
people around you involved.
"Community
support and volunteers made the TeddiTop possible. The lady who
came up with the name, the patch, the sewers, and my mother, who
got donations and community support they made it possible. We don’t
make money on it it’s just to help the kids.
"When I
see the little kids in the vests, playing and laughing, the feeling
is incredible. That’s what it’s all about."
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