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Febrile,
frightened and short of breath after a bout with bronchitis, Gaynelle
Johnson urged her partner to call her doctor. But the doctor rebuffed
the woman, Johnson recalled, saying he could speak only to a blood
relative.
That
was 10 years ago, and the Sacramento, Calif., marriage and family
counselor admits she had nothing no medical power of attorney, no
living will, no domestic partner registration documenting the relationship.
Nevertheless, she says, "It absolutely floored me. I wanted
her to make the decisions, but he said no. I had no idea they would
not respect my wishes."
Stumbling
blocks
Beginning
this month, situations like Johnson’s will become part of the past
in Vermont, as a bill creating a marriagelike "civil union"
for same-sex couples goes into effect. The bill, the first in the
nation, creates an institution for gay and lesbian couples that
almost parallels traditional marriages, but without the name. The
300 or so benefits that couples will receive include inheritance
rights, tax breaks and the power to make medical decisions for a
partner.
Elsewhere
in the United States, however, health care workers still will find
themselves faced with decisions that, in many cases, pit their emotions
against the law. At present, more than 30 states ban same-sex marriages
and, in 1996, Congress passed the Defense of Marriage Act, which
allows states to refuse to recognize same-sex marriages certified
in other states.
California
strengthened legal barriers to same-sex unions in March when it
passed Proposition 22, which stipulates that "only marriage
between a man and a woman is valid or recognized in the state."
Besides
creating ethical quandaries for nurses, such laws can hamper health
care, said certified rehabilitation registered nurse Faith Brothers,
MS, RN, executive director of the Vermont State Nurses Association.
"It’s
difficult, especially in ICU, when you have a significant other
who is shut out of the process and a family member who is not all
that connected making the decisions," she said. "It really
is a hindrance in nursing and caring for people, and in getting
them what they need as a patient. It’s heart-wrenching."
Kate
O’Hanlan, MD, a gynecologic oncologist at Stanford Medical Center
and past president of the Gay and Lesbian Medical Association, agreed.
"I don’t think most doctors and nurses want to get in the way
of the family we’ve chosen, but sometimes the law has that effect.
I think most doctors and nurses don’t want legal barriers getting
in the way of their compassion."
Even
before same-sex civil unions were proposed in the Vermont Legislature,
the state nurses association pressed the issue in its legislative
platform, declaring health care a "human right" that should
be available to "all people regardless of race, creed, color,
gender, age, physical disability, lifestyle or sexual orientation."
"It’s pretty simple," Brothers said. "We support
those things that enhance people’s access to care. When you look
at our constitution and I looked it clearly supports that."
Papers,
please
Outside
of Vermont and this applies to Vermont couples traveling
in other states advance directives are the best way to make
one’s wishes known. "We really encourage people to get their
paperwork done before they get sick," said Linda McGehee,
Ph.D., RN, an assistant professor of nursing in the School of Nursing
at Georgia State University in Atlanta, who runs a cancer support
group for lesbians.
Advance
directives can be used in every state and are backed either by legislation
or court precedents. The 1991 Patient Self-Determination Act requires
hospitals and nursing homes to inform patients that they have the
right to fill out advance directives, even though many defer.
Same-sex
couples need the same paperwork as any other couple, said Karen
Orloff Kaplan, MPH, president and chief executive officer of the
Washington-based Partnership for Caring Inc., a successor to the
group that created the first living will.
"The
first [document]," she said, "is a living will, which
stipulates what kind of care you would like or not like if you can’t
speak for yourself. The second is a medical power of attorney, or
health care proxy. That is the document in which you appoint a representative your
lobbyist if you will to be your spokesperson."
Ultimately,
however, advance directives are only as strong as the understandings
on which they were built "The other half of the job is to talk
about it with your partner, your family and your health care provider.
You have to make sure people understand and agree. If you do it
alone, it’s just a piece of paper," Kaplan said.
Despite
absent paperwork and legal barriers, "there are good stories,
too," McGehee said. "I heard of one woman who was dying
of breast cancer and the hospital intervened to let her partner
in. And it happened because of the efforts of the nurses and chaplain.
And it was a Catholic-based hospital here in the South. I was really
proud of that hospital."
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