The story
of baby Ruthie is a story that deserves to be told. It's a story
that recounts the life of our daughter, who lived for only six
days. It's not a long story and it will never have new chapters;
however, "A person is a person, no matter how small,"
according to Dr. Seuss, and every person has a story. Here is
Ruthie's:
On June 3,
2000, my husband and I learned that our dream to be a family with
a child to hold, love and cherish for the rest of our lives was
finally going to come true.
Unfortunately,
that dream was not going to come to fruition. After my amniocentesis,
our daughter Ruthie, who was named in honor of my mother, was
diagnosed with an unfamiliar chromosomal abnormality and a heart
defect.
The perceived
effects of her "deformities" were conveyed to us over
the phone by faceless genetic counselors. We were informed that,
if our baby survived to term, she would be profoundly retarded
and have severe physical deformities, and that her heart problem
was not compatible with life.
Nevertheless,
Ruthie was our daughter, and we were going to love her as best
we could for as long as we could. We were going to find joy in
every fetal movement she made and in every day I was able to continue
to carry her. That being our decision, there were those in the
medical profession who either helped or hindered our progression
during the remaining five months of the pregnancy.
Five nurses,
however, showed Ruthie, my husband and me such compassion and
gentleness that they are now forever a part of her story.
A week before
Ruthie's birth, we met the first of those nurses: Nurse Theresa.
My husband and I went to the hospital to have my blood pressure
monitored for several hours. I was placed in Theresa's callused
yet gentle hands. I was not her only patient that night, yet she
made me feel as if I were. Theresa didn't treat us clinically-she
treated us compassionately.
For the hours
that we were together, she patiently explained the various test
results that came in, and spoke about the physical effects I would
experience during and after the delivery.
Before Theresa,
no one broached the subject, for all presumed to know that I would
not be one of the lucky mothers who would be taking their baby
home.
The next day,
Theresa phoned us at home and told us that we had been on her
mind. She shared that, in times during her life when she had suffered,
writing had helped her. She told us that she had a journal for
us and she hoped it, too, would help us along our path.
She also volunteered
to be at Ruthie's birth for support or care, and she left us her
home number.
During the
five months before meeting Nurse Theresa, the light at the end
of the tunnel was an oncoming train, but with Theresa, it became
a beacon.
On Feb. 16,
our baby was born a hearty 7 pounds, 8 ounces and 20 inches long.
There were many people in the room-one of whom was Nurse Beth.
Beth works
in the hospital where I delivered, and has been our friend for
several years. At Ruthie's birth, she was my pillar of support.
During the
previous five lonely and scary months, Beth was always networking
with other nurses, making sure I saw the best doctors. Because
of Beth's sensitive choreography behind the scenes, what could
have been the scariest hours of our lives, Ruthie's birth, were
instead unsurpassed in beauty and peace.
Our daughter's
birth was handled with such sensitivity that Nurse Beth was immediately
elevated to Auntie Beth.
Several hours
after Ruthie was born, she was transferred to a NICU in another
hospital. My husband and I were caught off guard by the foreign
environment. There were so many alarms, lights, rushing hospital
personnel and babies in one giant room. There was no privacy.
Likewise,
we were ill prepared for the overwhelming feelings of helplessness
at seeing our baby daughter hooked up to so many machines. Our
baby was struggling; yet at that time, we, her parents, were the
least qualified to comfort and help her. It was in the NICU that
nurses Kas, Karen and Francesca became part of Ruthie's story.
Nurse Kas
arranged for Ruthie's transport to the new hospital. Unknown to
us, Kas kept in touch with the hospital to check on Ruthie's status
even though she had never met her.
On our daughter's
fourth day in the NICU, Kas was assigned to Ruthie on the night
shift. She phoned us at home to keep us updated. She even made
a pretty name card for Ruthie's isolette, which is now one of
our most prized possessions.
Nurse Kas
never rushed us. She re-explained all the confusing information
the doctors had hurriedly told us, in language my husband and
I could understand. She was always gentle yet honest.
After speaking
with Kas, we felt more secure knowing Ruthie was in her care.
With Kas, we were not alone.
On Feb. 21,
my husband and I made the decision parents should never have to
make. After being advised by numerous doctors, we decided to take
our Ruthie off life support. Almost immediately, the octopus of
tubes was disconnected, and for the first time since her birth,
we were going to be able to hold and comfort our daughter.
Nurse Karen
was in charge of Ruthie that day. She arranged for us to have
a private room with a rocking chair and a couch. Within minutes,
Karen came in and placed Ruthie in our arms. She dressed Ruthie
in a little white dress with a green lace collar. This sweet nurse
was so gentle. She checked on us every hour and made sure that
Ruthie remained comfortable.
At the end
of her shift, Karen came in with a gift for Ruthie: a green Beanie
Baby named Arial. Karen's kindness provided Ruthie with the only
dress she ever wore, the only toy she ever touched and a private
room where, for 12 hours, we were finally a family.
During this
precious time, Kas visited and cried with us. She kept us supplied
with beverages and food, took pictures of Ruthie and told us how
beautiful our little girl was. Kas gave us the gift of pride-pride
for the love we had for our Ruthie and the strength it gave us
to persevere; pride for knowing we tried our hardest to be good
parents to our baby; and pride for simply having a pretty little
girl.
The final
nurse in Ruthie's story was Nurse Francesca. Francesca was in
charge of Ruthie's care during her final hours with us. She sat
silently with us in our sorrow. She didn't offer many words, other
than, "I am so sorry!"
Our Ruthie's
life was filled with needles, bright lights and constant alarm
bells. It was only in her final 12 hours that she felt her parents'
soft, safe arms, smelled her father's sweet scent and heard her
mother sing the familiar prayers that were sung aloud to her so
many times throughout her development.
At 10:35 p.m.,
while still in our arms, Ruthie finally rested. Her loving father
and I cried with such sorrow; we cried for the memories we would
never make, for the hugs we would never receive and for the daughter
we would never see again. We cried for the tube that had been
down her throat and for the dozens of needle pricks she endured
on the heels of her tender little feet.
Our beautiful
Ruthie tiptoed gently and quietly out of our lives with a slight
smile-at least in our eyes. She smiled with the ageless wisdom
of her soul, for she knew how much she was wanted and how much
she was loved.
When we finally
let go of our Ruthie, Francesca gently carried her on a soft pillow
out of the room. Francesca told us that she, personally, would
take care of our precious baby. She gave us the gift of peace
knowing that our baby was being taken care of gently.
Nurses Theresa,
Kas, Karen, Francesca and Auntie Beth treated our cherished daughter
and us with such kindness and compassion. They gave us comfort,
peace, pride and tangible, treasured mementos of our loved little
Ruthie.
Our daughter
was in our lives for nine months and six days, but she will be
missed and remembered forever. The quality of time and the loving
care these nurses shared with Ruthie have given them a special
place in her story. These five nurses forever will be remembered
in the retelling of Ruthie's story. It will be a story that will
be retold often.