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As we move through our respective careers, there are
always a few patients we remember as if it were yesterday.
I think the reason these patients hold such a dear place
in our hearts and memories is because of the relationship
that we were privileged to develop and share with them
while under our care.
I remember the beautiful 16-year-old cheerleader who
found out she was pregnant, only to be informed that,
by the way, she also had leukemia. I was her primary
nurse throughout her nine-month pregnancy, four relentless
rounds of aggressive chemotherapy and her amazingly
normal delivery of a healthy baby girl. We had to persuade
her doctors to sacrifice her sterile laminar flow environment
to let her baby stay with her during her last few days.
She died the day after her daughter's first birthday
and two weeks after she achieved her GED. For her, she
met the two life goals she had set at the beginning
of her treatments.
If there is one undeniable effect of managed care on
nursing, it is that inpatient nurses no longer get the
same chance at a "relationship" with patients
with lengths of stay so short and 12-hour shifts dominating
work schedules. I believe that this is one of the reasons
why nurses have sought other care settings where they
can establish and maintain relationships with patients
over time. The clinical challenges and autonomy of these
settings also are a compelling motivation for many nurses.
It is evident that nurses who choose to work in rehabilitation,
hospice and home care have found settings in which they
can establish more long-term relationships with patients
and their families. Our cover story on Dolly Arro, private
nurse to actor Christopher Reeve, shows the importance
of continuity and relationships in the nurse-patient
care contract.
Nursing would do well to explore creative care delivery
models that allow nurses to develop and sustain patient
relationships outside the normal constraints of the
typical hospital stay. What if our home care visits
were with the patients we saw in the clinic and in the
hospital, etc.? I'll bet patients would love it.
Sidenote: Having had the honor of working at Rancho
Los Amigos Medical Center, I am not sure who I admire
more: the nurses, therapists and physicians who care
for the spinal injured, head injured and other physically
challenged patients there, or the patients themselves.
To many patients, Rancho is almost home, and the staff,
an extension of their families.
Never have I worked in a health care organization where
the sense of mission was so palpable.
Unfortunately, the Los Angeles County Department of
Health Services has designs on closing this internationally
known rehabilitation center. We should hope and pray
that this does not happen. The health care community
in Southern California is not equipped to handle the
large number of uniquely challenged patients that Rancho
has cared for throughout the years.
Rancho is not alone in the county's planned cuts; the
infrastructure of public health care in Los Angeles
is at risk. Regardless of where you work, if you live
in or near Los Angeles, the ripple effect of these proposed
cuts will be felt by all.
Discuss this and other topics with your colleagues
at www.nurseweek.com/rnvillage.
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